:Shennanigans:

I can feel the drain of energy, and I admit it is not something with which I am used to dealing. I can sleep for 4-5 hours and make it through the next twenty hours without reservation, but such is not going to be the case right now. I am working on the adjustments, but guilt rides like melting snow down an eighty degree hillside. Even one single load laundry seems insurmountable.

Onto the brighter and better parts of news, however, rather wallowing in the nastiness...

As most of you know, we were able to obtain privileges for the House Institute surgeons to perform my surgery at Kaiser. This is the most amazing news we could have hoped for! Then, after the long wait of the day to make sure an operating room would be available on the day the surgical team is available, we received confirmation yesterday afternoon. Nothing like waiting until :10 on the clock and 20 yards to go to win the game, right? We quickly called down to the scheduled Kaiser surgical team and cancelled tomorrow's appointment with tears and sighs of relief.

Thus, the most recent information is this: next Thursday (the 13th), at Kaiser Sunset facility in LA; surgical team comprised of House Inst. surgeons, Kaiser Chief of Neurosurgery/Head and Neck Surgery, Chief of Hematology, an anethsethesiologist (sp?), and one or two other physicians. The Head and Neck doctor who granted the privileges will be out of town, which is why I now have the Chief of Neurosurgery/Head and Neck Surgery - he will be coordinator, overseer, and assistant throughout the surgery and the recovery, making sure the House team has no issues when it comes to what they need by and through Kaiser.

They expect me to be in ICU/CCU for a few days, then moved to a regular room for another four or so. Nervous, of course, but so relieved that the course of action we have been fighting so hard for came through in my favor.

The twenty percent chance is NOT a large chance, and I try to remind myself and keep myself in check regularly so that my hopes do not get too high and have disastrous consequences after the surgery. What I can say now is that I will be able to sleep at night knowing, even if I cannot hear, I had the best doctors in the nation give me the chance that the Kaiser doctors would not give - if they cannot accomplish this feat, no one could. That really is all there is to it. I will be able to live with myself and know I did everything possible to fight for myself. That feels da** good.

The facial paralysis is still also a risk, but it is a risk inherent in any brain surgery - duh. All they can do is the best they can do. They have assured me that IF the worst case scenario occurs, there are options to repair/restore most damage, but it will take time. I can hang with time. There are also therapy options available if smaller things go awry. Those too I can hang with. Best case scenario, however, and what I dream of is to wake up and hear - just be the one in five that was so fortunate and lucky. Murphy really needs a vacation next week - anyone up for a visitor??? Hehehehe.

Thanks to all you JSrs with your a**-whoopings brought to the table, the sunshines, and the love; R and I cannot tell you ENOUGH how much they mean and how much they have helped us get through the scary dark gloomy days of the past two weeks.

Arrivederci - but only for now.

Ghost Orchid - are they not simply lovely?

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2008-03-04 8:01 AM probably not a bad idea Previous Entry :: Next Entry Mood: short of energy Read/Post Comments (4)	I can feel the drain of energy, and I admit it is not something with which I am used to dealing. I can sleep for 4-5 hours and make it through the next twenty hours without reservation, but such is not going to be the case right now. I am working on the adjustments, but guilt rides like melting snow down an eighty degree hillside. Even one single load laundry seems insurmountable. Onto the brighter and better parts of news, however, rather wallowing in the nastiness... As most of you know, we were able to obtain privileges for the House Institute surgeons to perform my surgery at Kaiser. This is the most amazing news we could have hoped for! Then, after the long wait of the day to make sure an operating room would be available on the day the surgical team is available, we received confirmation yesterday afternoon. Nothing like waiting until :10 on the clock and 20 yards to go to win the game, right? We quickly called down to the scheduled Kaiser surgical team and cancelled tomorrow's appointment with tears and sighs of relief. Thus, the most recent information is this: next Thursday (the 13th), at Kaiser Sunset facility in LA; surgical team comprised of House Inst. surgeons, Kaiser Chief of Neurosurgery/Head and Neck Surgery, Chief of Hematology, an anethsethesiologist (sp?), and one or two other physicians. The Head and Neck doctor who granted the privileges will be out of town, which is why I now have the Chief of Neurosurgery/Head and Neck Surgery - he will be coordinator, overseer, and assistant throughout the surgery and the recovery, making sure the House team has no issues when it comes to what they need by and through Kaiser. They expect me to be in ICU/CCU for a few days, then moved to a regular room for another four or so. Nervous, of course, but so relieved that the course of action we have been fighting so hard for came through in my favor. The twenty percent chance is NOT a large chance, and I try to remind myself and keep myself in check regularly so that my hopes do not get too high and have disastrous consequences after the surgery. What I can say now is that I will be able to sleep at night knowing, even if I cannot hear, I had the best doctors in the nation give me the chance that the Kaiser doctors would not give - if they cannot accomplish this feat, no one could. That really is all there is to it. I will be able to live with myself and know I did everything possible to fight for myself. That feels da good. The facial paralysis is still also a risk, but it is a risk inherent in any brain surgery - duh. All they can do is the best they can do. They have assured me that IF the worst case scenario occurs, there are options to repair/restore most damage, but it will take time. I can hang with time. There are also therapy options available if smaller things go awry. Those too I can hang with. Best case scenario, however, and what I dream of is to wake up and hear - just be the one in five that was so fortunate and lucky. Murphy really needs a vacation next week - anyone up for a visitor??? Hehehehe. Thanks to all you JSrs with your a-whoopings brought to the table, the sunshines, and the love; R and I cannot tell you ENOUGH how much they mean and how much they have helped us get through the scary dark gloomy days of the past two weeks. Arrivederci - but only for now. Ghost Orchid - are they not simply lovely? Read/Post Comments (4) Previous Entry :: Next Entry Back to Top
:: JOURNAL HOME :: SUBSCRIBE TO THIS JOURNAL :: Brainsalad :: Friendly Fiction - Adventures in writing. :: Girl Child :: JamTart :: Kenny :: LisaMarie :: Netter...and her Empire :: Reenie :: RT :: Scout :: SmartiPlants :: WordWebbing ::