We finally got the new medicines in yesterday...after trying for 3 weeks. While I am in no way an alarmist, I was really getting out of sorts with the "system"....as I said before, I have been told that cancer patients are not really an "emergent" field of medicine. Many emotions ran thru my mind....and this can be taken any number of ways. They are a "guinea pig" and medicines are just to "try out" to see if they work or not? OR They have a terminal illness anyway, so we don't view them as ever having any "emergent needs".....OR The patient will get the "standard of care" but nothing more OR whatever else someone may think...
Let me be the first to step in here and tell ANYONE who says that to me, when someone has new lesions, or tumors, or cells growing inside, to them it is a VERY URGENT need to get a medicine in themselves RATHER quickly....because they are fighting for their lives....and I dare say that that person should NOT have to wait so long to get something that gives them even the slightest shreds of hope. So, I see that as a very URGENT need for that person!!!!
It just beguiles me to hear folks's comments at times.....people for the most part, have NO CLUE what the cancer patient is going thru. EVERY person's cancer is different, they handle it differently, they respond differently, they suffer differently, and they handle life differently. We are all unique, no two of us are alike, so how do we think disease processes can be any differently. I firmly believe that a person's emotional outlook has a major impact on their body's reaction to disease...and I firmly believe in the power of prayers. I have went above and beyond to protect Cat from stresses of everyday life, allowing her to rest often, sleep in late, and do what she needs to remain stress free, or as much as she can....I watch over her daily care routines, helping her all I can...making sure she gets good nutrition, hydration, and skin care....some days we just "chill" and leave phones off, watch the Tube, or just chat a bit...or go for a ride....no social interruptions....just us and the wind...
I am especially vigilant now, watching her for signs of any type reactions to the new drugs, watching her skin, hands, and feet, making sure she drinks plenty, and rests well...and this brings me great joy...to be able to give back to her what she spent 23 years doing in the hospital...wonderfully compassionate care to so many...
We have had our eyes opened to the "system's filing specific insurance conversion on a specific time scale, making sure life ins. is converted, Cobra forms are signed, and Retirment fund is rolled over...I am here to say, except by the grace of God, did we make it to HR in time to get these things seen to...one instance we had just one more bsuiness day to get the paperwork done and sent in...or she would have lost so much...in another, we had just a matter of days til something else would have been lost forever...and one thing we just happened to ask about, or it would have been totally lost in the "balck hole"...anyway, we have it all settled now, I think...lol.
I am sleepy and find myself rattling on, so I will part now....thanks for listening to me again...."Chatter"